Subject: Lissencephaly
| Organisation | Acronym | Website | Description | Language | Origin | Local Support | Helpline |
|---|---|---|---|---|---|---|---|
| Lissencephaly Contact Group | LCG | www.lissencephaly.org.uk | A collection of families who have a child with some form of Neuronal Migration Disorder. There are presently about 170 families represented by The Group, mainly from the UK, but also from Ireland, Australia, Canada, France, The Netherlands and Norway. They provide an initial contact point for recently diagnosed families and a quarterly newsletter which focuses on the children, their condition, care and treatment; their families;news about research;up and coming events. Periodic meetings where families can gather and meet experts in the field of Lissencephaly and Pædiatric care. |
Eng | UK | |
01562 851429 |
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