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Subject: Lissencephaly

Organisation Acronym Website Description Language Origin Local Support Helpline
Lissencephaly Contact Group LCG www.lissencephaly.org.uk

A collection of families who have a child with some form of Neuronal Migration Disorder.  There are presently about 170 families represented by The Group, mainly from the UK,  but also from Ireland, Australia, Canada, France, The Netherlands and Norway.  They provide an initial contact point for recently diagnosed families and a quarterly newsletter which focuses on the children, their condition, care and treatment; their families;news about research;up and coming events. Periodic meetings where families can gather and meet experts in the field of Lissencephaly and Pædiatric care.

Eng UK This organisation has a support group 01562 851429

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